Howe Could They...

Updated 1-14-09

by Big Noise and Magitator

There is a perverse pride, being from Illinois. We take a chest thumping pride at our corrupt politics and gangster past. Our daughter, who lived in Chicago for several years, is now in Boston. When the Blago scandal broke, she and someone from Rhode Island were talking about it. The woman from RI was saying how corrupt their government was. Our daughter, with great bravado replied, “There was more corruption on my block in Chicago, than in the whole state of Rhode Island.”

(OK,-she-is-Mike’s-daughter,-but-we-don’t-like-to-make-those-kind-of-distinctions-in-our-home,-so-I-called-her-my-daughter-too-but-I-don’t-want-to-be-presumptuous-or-make-her-mom-feel-bad-but-I-digress…)

Seriously, watch the Illinois pundits that provide commentary on national television. They smile while they pundit. Folks talk to one another about it on the street, smile and shrug. Illinois, the birthplace of “the smoke-filled room”; the “vote early and often” cliché; the patronage of the Dailey machine; the gangster owned city tow lots; and more. What more can we expect here?

I cannot deny I was a part of that Illinois “our politicians and more corrupt than your politicians” fun group. However, it all changed yesterday. I attended a committee hearing about the closure of Howe Developmental Center. We wanted to show our support for closure by showing up at the budget allocation commission meeting. No money means it would have to close.

(Campaign for Real Choice Photo)

Howe is a hellhole of a residential facility. The federal government decertified it a year ago. Equip for Equality (our protection and advocacy agency) has investigated the facility seven times documenting describing in gruesome detail the deaths of 21 people and multiple instances of abysmal care. Two more people died there in the last two months. The United States Department of Justice is investigating violations of the Constitutional rights of the people living there.

The committee meeting was to start at 3:00. It started at 5:30 (it is after all, Illinois). When they finally met, their first order of business was to “quarantine” any action on the closure until sixty days after the senate impeachment trial verdict. Thus, they knocked the train to close Howe right off the track.

Have these folks every heard of multi-tasking? Can they only handle one thing at a time? People are dying for Christ’s sake!! Our most vulnerable people need action, their very lives are at stake; and this joint committee just put down the ball and walked off the court.

One legislator, Elaine Nekritz, Democrat from Des Plaines spoke for the closure of Howe. She noted Illinois dead last in offering community options to people with disabilities. She also pointed out we are under federal mandate to shut down these institutions. She was outvoted 10 to 1.

AFSCME, and other supporters of keeping Howe open want to use the additional time to pressure the politicians.

We have to use that same time to speak the truth to the legislators. As advocates for people with disabilities, we will use our voices for the most vulnerable. They should not disregard us. We have numbers: as we continue to organize ourselves, our strength will make them feel the power of the disability rights movement.

Crossposted at BigNoise

Here is excellent information on specifics on why Howe should be closed NOW

Left has blind spot on disability issues

There is a struggle going on and we are on the wrong side. On September 23, as part of the Jobs with Justice national meeting, there was a demonstration that put JwJ squarely on the side of the oppressors and exploiters.

The Bellefontaine Habilitation Center outside St. Louis is a nearly 100 year old institution built to separate people with disabilities away from mainstream society. It is one of many such institutions built in a time when locking people with disabilities up was what passed for treatment.

Across the country rank and file activists are fighting for liberation; to tear down the walls of places like Bellefontaine that keeps an entire class of people living separate and apart from family and friends. The disability rights movement is engaged in a battle to shut down state-run institutions that segregate and imprison people with disabilities.

The primary aspect is not jobs but to continue the apartheid of people with disabilities. Would Jobs with Justice join with AFSCME in fighting for more prisons? After all, AFSCME stands to gain members with each additional jail guard position. So what is so progressive about places like Bellefontaine?

People on the left should familiarize themselves with disability issues and the disability rights movement. After all, many of us are starting to think about if our futures are going to be in some nursing home or other place of care or confinement.

The disability rights movement has a history. We have our own “Brown v Board of Education”. In July 1999, the Supreme Court issued the Olmstead v. L.C. decision. The court’s decision in that case decreed that Federal, state and local governments develop more opportunities for individuals with disabilities through more integrated housing options. The Olmstead decision requires that the states administer their services, programs and activities “in the most integrated setting appropriate…”

Let me offer a quote from Marta Russell in her book “Beyond Ramps”,

THE FINAL (PROFITABLE) SOLUTION-- MODERN INSTITUTIONALIZATION AND THE COMMODIFICATION OF DISABILITY

Nobody wants to go into a nursing home. That should tell us something. . .

-Wade Blank, co~founder of ADAPT

The truth has always been dangerous to the rule of the rogue, the exploiter, the robber. So the truth must be suppressed.

-Eugene Debs

The question for the entrepreneurial nation remained, what to do with the "unproductive," those not exploitable as laborers? And ultimately, how can disabled people be made of use to the economic order? The solution has been to make disablement big business.

Under the Money Model of disability, the disabled human being is a commodity around which social policies are created or rejected based on their market value. The corporate "solution" to disablement-institutionalization in a nursing home-evolved from the cold realization that disabled people could be commodified; we could be made to serve profit because federal financing (Medicaid funds 60 percent, Medicare 15 percent, private insurance 25 percent) guarantees an endless source of revenue. Disabled people are "worth" more to the Gross Domestic Product when we occupy a "bed" instead of a home. When we individually generate $30,000~$82,000 in annual revenues, the electronic brokers on Wall Street count us as assets and we contribute to companies' net worth. The "final solution"--corporate dominion over disability policy-measures a person's "worth" by its dollar value to the economy.

In order to optimize profits, the nursing home industry must maintain control over the lives of the disabled. Our current public policy predicament is an acknowledgement that the Money Model is well in place-but the prisoners of profit are intent upon revolt.

THE JAIL BREAK

Wade Blank, co-founder of ADAPT, Americans Disabled for Attendant Programs Today, began his long career as a disability advocate while he was employed by a Denver, Colorado, nursing home to set up a ward for young disabled people. His short-lived nursing home career fell within the years when legislatures were ending the old form of institutionalization by closing the doors of state institutions for the disabled, and nursing homes were finding that housing the displaced individuals could be very profitable.

The old sort, well documented by Wolf Wolfensberger in The Origin and Nature of Our Institutional Models, ran the gamut on social "solutions" for disability. Wolfensberger traces the original societal goals of institutions for mentally disabled people: first the professional's goal was to make the "deviant" un-deviant through behavior modification; that gave way to sheltering the deviant from society by isolation; and next, the goal was to protect society from the deviant through inexpensive warehousing, segregation, and sterilization. But eventually experience and research led professionals to a loss of rationale for all of the above practices. Wolfensberger concluded, "Today, of course, we know that most retarded adults make an adequate adjustment in the community, and that they are more likely to be the victims rather than the perpetrators of social injustice." The experts realized that "deviance" was largely a social construct.

Disability historian Dr. Paul Longmore explains that the first widely held view of physical disability is the "moral model;" that is, society believed that disablement was a "deviance," caused by a lack of moral character or intervening supernatural forces, in any case, dangerous to society. The next historical view is the medical model-that disability is biological by nature but must be con~ trolled by curing the "defects "-and resulted in medical and paternalistic social intervention such as sterilization, segregation, and institutionalization…

Jobs with Justice and AFSCME come down on the other side, praising state legislators for halting the creation of community based group homes in favor of keeping Bellefontaine open. Our progressives make a point in that the Governor of Missouri is a right wing asshole and his policies must be opposed. But it was Lenin who said; “Even a broken clock is right two times a day”.

I would suggest that people read “Beyond Ramps” by Marta Russell and check out a couple of on line sites like http://www.ragged-edge-mag.com/ or the mainstream http://www.dredf.org/